Foundation Updates
ATP1A3 Rome Symposium
Second Symposium on ATP1A3 in disease
Genotype/Phenotype Correlations, modelling and identification of potential targets for treatment
Catholic University School of Medicine
Rome, Italy
23 – 24 September 2013
Mark your Calendars! 2014 AHCF Family Meeting – Minneapolis Minnesota!
It is with great excitement that we announce the AHCF Family meeting for 2014!! We will be travelling to Minneapolis Minnesota and hosting the meeting at the Hilton, Minneapolis/St Paul Airport, Mall of America www.mspairport.hilton.com The meeting will take place June 26 – 28 with clinical appointments by Dr Swoboda’s team from the University of Utah taking place before the meeting June 24 – 26.
Thank you to Mary Kay Riley for finding this venue which will be perfect for our meeting! (more…)
Lynn Egan Elected AHCF President!
The Alternating Hemiplegia of Childhood Foundation Board of Directors is very excited to announce that Lynn Egan was unanimously elected president of the foundation. (more…)
New Research Article about AHC
Alternating Hemiplegia of Childhood-Related Neural and Behavioural Phenotypes in Na+,K+-ATPase α3 Missense Mutant Mice
Free, full text article on mouse model of AHC gene Read Here
Fundraisers
Rock the Reel Update
Rock the Reel fundraiser for Kiley Andrasco by 2 Hearts Rock raised $2595! Thanks so much and keep on rocking for AHC and rare diseases!
Bid to Rid AHC!
Auction Frog is Live! Register – Login- Bid – It’s that easy!! New items added everyday. (more…)
Raising funds for AHC
Congratulations to Michael Sliwka for his incredible 70 mile run that raised $2000 for AHC and also to Renee and Paul Hodes’ Tag Sale that also raised $2000! Many Thanks for a job well done!
2nd Annual Golf Outing in honor of Kiley Andrasco
Terry Sharo is hosting his second annual golf outing for his granddaughter Kiley on August 2 @ beautiful Deer Creek Golf Course in University Park Illinois.
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